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Children get creative to raise money in memory of Demi, 6

SUS-140717-163655001

SUS-140717-163655001

Family and friends of a little girl who died this year will be using the craze for loom bands to raise money for the hospital in which she was treated.

Six-year-old Demi Wall, of Broadfield, died in the Royal Brompton Hospital on March 26 following a life-long battle with cystic fibrosis.

Her mother, Tina Margetts, has organised a fun day to be held at Creasys Drive Adventure Playground on August 9.

Demi’s school friends have made hundreds of loom band bracelets and charms which will be sold at 50p each and Tina has been inundated with offers of raffle prizes from local businesses.

Money made from the fun day will be presented to the hospital when Demi’s family takes part in a bereavement day later in August.

When asked what Demi would have thought about the fundraising effort being held in her name, Tina said: “I think she would be amazed. She would be like ‘oh my God, wow’!”

Demi, who has a twin sister called Destiny, was diagnosed with cystic fibrosis when she was four weeks old.

Tina described her daughter as “a quiet girl who would share absolutely everything and leave herself with nothing”.

She said: “She was a bright, cheery girl who was loved by everyone. Even though she went through a lot, she was bright, crazy and colourful.”

Like most children, Demi had a habit of playing her music too loud, filling the house with the sound of One Direction.

When the cystic fibrosis saw her lose so much weight she had to be tube fed, Demi was admitted to the Royal Brompton. Tina said: “She took a turn for the worst and really deteriorated.”

As well as Destiny, Tina has three other children – Tommie, 14, Layla, 10, and Millie, 1.

When Demi died, Millie was only a few months old and Tina said it was the need to care for the baby which helped pull the family through.

She added: “I can’t fault the hospital on anything they did. They did so much for us and they never stopped trying.

“If they keep doing that for other families then we can do this for them.”

The fun day will run from noon to 4pm.

 

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