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Crawley youngster spends pocket money on fundraiser

jpco 2-4-14 Langley Green School (Pic by Jon Rigby) SUS-140331-123904001

jpco 2-4-14 Langley Green School (Pic by Jon Rigby) SUS-140331-123904001

A ‘protective big sister’ held a fund raiser at her primary school in aid of the charity which has helped her brother with epilepsy.

Ten-year-old Ellie Manville rallied her school friends at Langley Green Primary School to dress up in purple for a day on Wednesday (March 26).

She suggested the idea to raise money for Young Epilepsy, a charity which has helped her family to look after her three-year-old brother Sonny since he was diagnosed with Epilepsy in 2012.

Ellie’s mother Carly said it was a shock for the family to be told the diagnosis, even more so because they were told Sonny’s condition would deteriorate over time.

Carly said Ellie has made lots of plans to raise money for the charity which has helped the family to understand how to look after Sonny.

Carly said: “She spent all her pocket money on a big lucky dip she bought all the little bits to go in and the wrapping paper to wrap them in.

“She never would have saved money for things before but when I realised what it was for, it broke my heart.

“She did a big assembly explaining what Epilepsy is and how it affects you. The school told me she dotes on him.”

Carly ran the Great South Run in aid of the charity when Sonny was first diagnosed and Ellie wants to take part in the Junior version next year.

Carly said Young Epilepsy provided the family with information on all the different medications they have to give Sonny.

The charity also gave them a book for Ellie to read which provided a simple explanation of what epilepsy was.

The school raised around £126 for the charity.

 

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