A week before she feared she would die a mother recorded herself reading a Christmas story for her little girl.
Kim Fairman, 34, of Behenna Close, Bewbush, has now celebrated her second Christmas after she had a liver transplant.
She recorded herself reading ‘A Night Before Christmas’ to her five-year-old daughter Maddison after she was placed on the top of the transplant list on December 14, 2012.
Kim said: “I wrote a letter to my daughter in case I did die.
“Ultimately I had to just try and put a brave face - I would cry a lot at night.”
Kim suffered from a rare genetic disease which caused non-stop itching and deprived her of sleep.
She was only diagnosed with MDR3 deficiency (a rare genetic disorder that affects the liver) after her brother died from it.
David Fairman died aged 29 while waiting for a liver transplant in 2010.
Kim said: “I thought my parents were going to lose another child.
“It was a fast progressing disease - once you get to end stage you could die within weeks - that’s what happened to my brother.
“I was scared because I could one day just fall ill.”
Her liver function continued to deteriorate and she was put on the transplant waiting list in July 2012 .
She said: “I was relieved because I felt I was going to be okay but there was another part of me that was scared because I had reached that level of illness that meant I needed a transplant.
“We tried to carry on but as that time progressed between July and December I became more ill and tired and had to give up work.
“It was a strain for the family watching me become so ill.”
The itching became extreme and she slept through most of Christmas that year.
Kim’s ordeal ended ten days after she had the transplant in January 2013.
She said: “It was a bit odd at first because you spend your whole life thinking you’ve got liver disease.
“I’ve gone from being in pain every single day and just living with that pain to not having to worry any more.
“It’s completely changed my life - I’m well, I’m healthy, I can play with my daughter, I’ve gone back to college.”
Kim wrote a letter to the donor’s family and said she thought of them everyday.
She said: “I will spend [Christmas] with my family and as always thinking of my donor because they would be spending their second Christmas without out their loved one.”
Kim started working and enrolled in an accountancy course in Central Sussex College Crawley earlier this year.